Junior Board member Brandon Burchman talks Turkey Trot.The Turkey Trot was wonderful once again; I hope that I can do it again next year. It was especially rewarding because I was able to share the day with my dad and my daughter. We shared the load when doing the deliveries. We delivered Thanksgiving dinners to 11 families on Staten Island. It is very gratifying to see how gracious and thankful the families are when we brought them the Thanksgiving meals. I would really like to thank SKIP for giving my family the opportunity to be apart of the Turkey Trot the last few years. My family loves being associated with SKIP, and I know that anything we do is appreciated by everyone at SKIP.
March 19, 2014 -- Meet a SKIP family, Kelly and Thomas Ruggiero and their children Isabella (Bella) and Jake. Isabella has Muscular Dystrophy V1. Bella tires easily and currently has difficulty walking up stairs and running. Buttons, zippers, and snaps are hard for her to operate. Children with this disorder can develop scoliosis and breathing problems and their muscles tighten over time.
MVP Health Care is making changes to insurance plans that are impacting families with children and adults with special needs, including a SKIP family from Rochester.
Senator Schumer Proposes New Law to Protect Children with Autism: Senator Schumer Proposes New Law to Protect Children with Autism.
FDA - Nephron Pharmaceuticals Corporation Announces Voluntary Recall of Albuterol Sulfate Inhalation Solution, 0.083%To see more details, please click on More button
FDA MedWatch - Carefusion Avea Ventilator: Recall - Underreporting Of Tidal Volume If Used In Conjunction With Neonatal Hotwire Flow SensorVentilator Recall Alert from the FDA: The FDA MedWatch is sharing an important product recall on CareFusion Avea Ventilators. Please click “more” to read the full update
Front Door Proposed Legislation
State Senator David Carlucci, Chairman of Senate Health and Developmental Disabilities, addresses complaints of Front Door policy and develops a plan to overhaul and improve the Front Door process...more
If you would like to reach out to the Senator please go to his contact page. http://www.nysenate.gov/senator/david-carlucci/contact
http://www.Medicaid.gov/HCBS for more information.
Michigan High School Robotics Team Creates Hand for Disabled Child.Check out this amazing story on Huffington Post Impact Impact of a four year old girl who was given a new hand by an inspired group of young students.
New York Office of Temporary Disability Assistance recently announced that the state has signed a new contract to operate and manage Electronic Benefit Transfer system. During the conversion there may be issues accessing benefits.
Have your voice be heard! Click on the link below for the OPWDD Complaint Form.
New Wheelchair Makes Dreams of Dancing Come True.A new wheelchair is helping children with disabilities, such as spina bifida and cerebral palsy, dance for the first time. Merry Lynn Morris, a professor at University Of South Florida, built the handsfree wheelchair which uses sensors to detect motion, similar to a segway. For the full scoop check out
Check out the incredible story of Melissa Smith.Recently paralyzed from the waist down and trapped in a five story walkup, Melissa’s sister was able to raise $400,000 to finance a new house for Melissa which will help her live independently. You can find the full story on the Huffington Post Impact Website.
Incredible Art of Inclusion Exhibition Highlights Artists with Disabilities.
As you may know from the beautiful artwork on our walls created by SKIP kids, we are passionate about showcasing art created by people living with disabilities. Now we want to share with you a moving report by the Irish Examiner with a story from Cork City, Ireland, where the work of 50 artists with intellectual disabilities will be displayed in an exhibition called Outside In: The Art of Inclusion. The exhibition is a collaboration between several art galleries, CIT Crawford College of Art & Design and the Cork City Counsel. For more on the incredible artists participating in the exhibition please check out the full article on the Irish Examiner Website.
Groundbreaking New System Lets People with Disabilities in Manhattan, NY Call for Wheelchair Accessible Taxis.
New York City has released a new system of hailing a cab for those living in Manhattan with disabilities. The “accessible dispatch” system can be accessed by phone, internet, or a free smartphone application, called “Wheels on Wheels”. As of now there are only 233 wheelchair-accessible taxis that can be hailed using the new system, an issue that’s resulted in up to 30 minute wait times. However, more than 2,000 new wheelchair-accessible cab medallions are in the process of being issued. The influx of new medallions will surely make a huge impact if they are granted. Check out the full story on the WNYC Transportation Nation Website.
Seven People with Disabilities Climb Mt. Kilimanjaro with Help of Philanthropist
In 2008, in honor of her 50th birthday, Philanthropist Herta von Stiegel headed a team of seven individuals with disabilities to Tanzania to climb Mt. Kilimanjaro. Working with UK-based Charity Enham, she selected the seven individuals, three of whom reached the mountains summit. We applaud Ms. von Stiegel for her inspirational effort in personally empowering people with disabilities. Read the full story from the Huffington Post Impact website.
Family Comes Together to Help Girl with Cerebral Palsy Win Triathlon
A moving story from Kansas via the Huffington Post, where 9-year old Cecilia Neimann, who suffers from Cerebral Palsy, became the first person to win the race’s new “Challenged Athlete” division. She finished the UCP Shawnee Mission Triathlon with the help of her mother, grandmother and a family friend. Get the full scoop on the Huffington Post Impact website.
Breakthroughs in Technology Helping People with Disabilities Finds Jobs
Remarkable new breakthroughs in technology are having a profound impact on the ability to work for people with disabilities. Real-time video sign language interpreters, tablet applications, voice activated phones and most recently Google Glass have helped the employment rate among people with disabilities jump 4% in the last two years, more than that of able-bodied workers. Read more about these amazing technologies and the people they’ve empowered at the Huffington Post Impact website.
Seatrac Device Helps People with Disabilities Swim
Seatrac is a revolutionary new solar-powered device developed in Greece, similar in design to a wheelchair, which allows a disabled person to be transported 20 meters from the beach to the water. This is a huge breakthrough in technology, as it allows for people with disabilities to enjoy being in the water. It’s already been exported to Cyprus and could show up soon in Croatia, France, UAE and Israel. We hope to see Seatrac in the U.S. soon! Read more about Seatrac on the Huffington Post Impact website.
June 1, 2013 – OPWDD has put into effect a new process when applying for services or changing existing services. This process is new in development and implementation. For more information please refer to the powerpoint presentation and manual directly from OPWDD’s website. Each Developmental Disabilities Regional Office (DDRO) has a Front Door representative; please click on the More link below to see your DDRO representative. Questions about the Front Door Front.Door.Technical.Support@opwdd.ny.gov
With almost 30 years at the New York State Office for People With Disabilities (OPWDD), Jim Moran has had a distiguished career and a lifelong commitment to people with develomental disabilities. Jim (now retired) has been a great friend to SKIP and is knee deep into an assemnt of SKIP over the last 30 years and directions it should go in the future. Click the picture above to listen to Jim talk about SKIP.